Slowly Going Sane

The poorly edited journal of recovery

Friday, December 26, 2008

Crash

Would you know it, first blood sugar like crash I have had in a month, and it falls on Christmas? Its really frustrating, not the crash, but not knowing why, and not being able to control it. I roll now, but last night, just wanted to sleep all through the party. It was really hard to be social.

I ate cake,a lot, and it overcame it, but I feel predictably crappy this morning. I want to eat nothing but broth to clear out. Ick. Still, I cannot. I have to stick with the 100 + grams carbohydrate or this will happen again tomorrow.

I have not made the time to model a new experiment to try and test out that hypothesis or to adjust to less, or something. My life has been changing very quickly. I am doing a lot right, so lets stick with this for a little while longer. At the very least, I need to bring the new doc in on this. Of course, I need a newer doc, as I no longer work anywhere near this one.

Thursday, December 25, 2008

New Growth

I have a garden on my baloney. I have bought some plants, but they are mainly rescues. A jade that was knocked over, an abandoned avocado tree, ripped up ice plant.

I went out on the baloney yesterday before heading out to mom's house, and I notice new growth on every plant out there. My parsley is coming up, the bamboo is putting out new shoots, the jades have new growth, and even the avocado has new leaves.

I feel like that is true in my life too. New growth is showing. I am pretty proud.

Merry Christmas you all

Whether you observe it or not.

Tuesday, December 23, 2008

The shark

This blog has kinda jumped the shark.

Lets try to bring it back to message a little.

I have some PTC results to discuss. Basically, my histamine is up to 57, which is good news, Cp is still low, and my Krytopyrroles are elevated, but only slightly. Nothing really else to report.

The recommendation for me is to quit the B-5, which really seemed to help the adrenals, lower the b-9, which I will do sloooooooowly to avoid problems with down-regulation and expect some rough nights (I may stay with my sister or someone while I am coming down), and increase the B-12. Not much else. Oh yes, remove the manganese. they speculate this might be responsible for the tremors. I don't think so. I think that was emotional stress now departed. I have not had the tremors since that time.

I have 4 liters of urine to submit for analysis for Wilson's. Again. This time, lets hope the collection works. Nothing like pee-ing in an orange bottle to make a man feel like a goon.

Friday, December 19, 2008

This has absolutely nothing to do with the topic of this blog

Of course, very little I am writting these days does...

I was talking with W, an old friend of mine. I told him of my recent departure from the firm, and how I am growing my business already faster than I can handle, but that I have an offer to start another law firm as a partner. Without any more, he gave me a phrase, roughly translated from German:

"shoemaker, stick to your shoes"

Awesome.

No more law. I am no partner. I am something else altogether.

Thanks W. See you in Africa in March.

Thursday, December 18, 2008

What a rush

Holy shit...how much do I love California? A lot. Dear god, how does anyone here need drugs?

I have clients and a business and I am doing what I have been waiting for for 6 years. Me. The crazy guy. And its all coming so fast. Maybe thats the power of knowing what you want...you can discard what you dont. Dead weight is soul killing.

Like surfing, sometimes you paddle into OB when it looks like white soup. You get beaten and dragged and held under. But you paddle and paddle and paddle and duck and gulp, and rest and fight one. Then, maybe in 5 minutes, maybe in 30, a hole opens up. And you go go go go go. Then...if you have the juice to make it, green water. 1998 I fell to pieces. There was little to do but break. Still, I just kept putting one foot in front of the other. When I dropped from 180 to 140. When I could not climb stairs without a breather. When I bled when I ate from places that blood should not be coming. When I heard things. When the sidewalk wiggled. When darkness came. When I could not read. When my ears rang so that I could not hear. When I could not construct sentences that people could understand. When my hands shook to badly to use a keyboard. When I just wanted so badly to quit. I guess if you keep fighting you catch your break. I did.

There are things I would have done differently, but I am proud. I am tough, and a fighter, and persistent like a snake with its fangs in the leg of life. You are going to have to cut off the head to remove it.

Acceptance, not resignation. I accept the illness and that it is me. But I fight the implications that it means that I am anything less that perfect like everyone else.

Tuesday, December 09, 2008

Final Essay:

I found my voice.

Actually, I found God’s voice. The one I looked for for so many years. The one I gave up on. The one I disavowed long ago. The one whose possibility I rejected. Then I went toward the calm and the love and the light and I found my voice.

Thank you all. This is my final essay on this blog. Others will probably follow, but this is the last one. I know what I need to do right now, how and what I am meant to sing. And now its time to begin. The music will fill me. I am ready.

Today I thought about J, B’s wife. 20 years ago, she was waiting at a light and a cement truck took a hard turn and overturned on her. They pried her out with the jaws of life. It broke nearly every bone in her body (presumably not the scapies). 20 years later she is still brain damaged, she makes the same cookies every day, she can see from only one eye and she has her hair done twice a week because she cannot reach her own head with her mended shoulders. Her husband B has hobbies and a wife he loves, but she is different now.

I thought about J. I stood beneath a lively oak tree, looking over the mouth end fork of the Rappahannock river, and I thought about a leaf. Then it made sense. I wondered if the leaf wept and cried out when it turned brown and curled over. I wondered if that leaf was gripped with the injustice of other leaves still green. I wondered if this leaf dreamed of a spring time it would never see. I wondered if that leave screamed out as it fell in a wind. And I knew it did not. It just floated down to the ground, where the ground opened is soddy arms and welcomed it home. The leave became mulch, which fed the tree. The tree next year bore fruit, and a squirrell ate one. That squirrel grew stronger and had a nest full of babies, and each baby was eventually eaten by a fozx, sustaining it, or died frozen on thr ground, and the trees and the grass welcomed them home. And the trees themselves, convert the very sunshine, tiny packets of electrons and nuetrinos and quarks and, into oxegen and leaves. Even the tiniest star we can see is contributing one tiny electron to the organism of another. Some chemical structure becomes part star. We are all stars, shining, browning, falling, baking cookies.

Somehow, I stopped worrying about my tiny consciousness and my death and my illness and I celebrated my own browning. And I knew the sound of the one hand when I die is the wind. Or the sprouting of a seed. and we all go on and on.

Then I knew what to do. Its like the morning I heard the sun speak to me, but infinite. I heard God again.

Somewhere along this path I forsake God. What could be his intention, what was to be gained by me laying crying begging to last till morning, weeping to my girlfriend, to my friend J, who is now gone like the winds. Why the paralysis, the blindness, the shaking hands. Why the impotency, the pain, the mixed words. Why the laughing man who found me in my car, the Walking man that found me in my room. The panic attacks, the slurred voice everyone thought was drunk, the nights alone while my peers fucked and fought and found love and luck and rolled the dice, climbing mountains, writing songs, drinking wine, getting the to go box. The glass in my gut, the voices in my head, the spider in my mind, touching me like an alien. the sirens wailing. The clenching fist, the shoes that showed my feet spasm. The ticks. The migraines weeks long with their halos and sounds and pain. The love I could not feel, the phone calls I could not hear. The hugs missed, the lovers I never embraced, the eyes I never looked into. The enemies who I saw everywhere, and the threats they posed. The subway signs I could not read, the books I could not penetrate into one sentence. The isolation, the humiliation. Losing job after job. The silver circle of the barrel of the gun that I saw so clearly when the blackness came. Its promise of sweet release. The hate. The Rage. The darkness I welcomed. Fuck you God. Ill not just deny you, I will stop believing in you. I will burn You out of that heaven you hide in you fucking coward. You bully. You cheat. And I will tell myself that You did this to me. I am an atheist. You are nothing. You are a superstition from weak people afraid to die. I want to die God. I want to reject this gift you gave me and I will work to prove I can do it on my own. All of it you son-of-a-bitch.

If, God, I am so fucking important to you, heal me, free me, prove yourself to me. I will strip you of your existence with math, and biology, and Zen.

Its hard to hear when you are talking. Its harder to hear when you are screaming. Its hardest to hear when you are stubbornly panicking and lunging at the helping hands about you with blood red fangs. But when I locked the door, stood in the circle and let the demons approach, and found that the demons looked like me. Then I let go. . I cried a pond of frustration and pain, I heard Him in math, and biology and Zen.

Its nothing huge. Its nothing odd sounding. I am not growing a beard or eating only the host (Sorry St Frank). Don’t think anything I will do with get me nailed to a cross. Probably wont even make someone’s forehead wrinkled. That’s not my path. In fact, you probably already know what it is. But now its mine. Bitches.

I cried tonight for about an hour. Tears of joy. How long since I have felt those? Held back a decade. Has it already been that long? But I have my path, and strangely have been on it for a while. You never really leave it, you just stop seeing it.

I don’t know how much more I have tonight. I am exhausted. I have started my song and its is my gift to you. My brown leaf, my cookies, my starshine.

Will the symptoms be gone tomorrow. Who knows. My leaf may be falling. Does it matter? Not like you’d think.

Thursday, December 04, 2008

A prayer for M

Say a prayer for M folks. She needs it tonight. Today. She is suffering, and feels alone in it. Will you all please take just a moment and send love her way. She is a truly extraordinary woman, who suffers as part of her extraordinariness.

Hold on M. I would hug you if I could.

Monday, December 01, 2008

Laughter

Laughter is good. Especially at yourself.

Been laughing a lot lately. Hi laugh, welcome home.

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